NWPF

November/December 2011

Dear Wellness Member,

Welcome to Be Prepared, the November-December 2011 edition of the Northwest Parkinson’s Foundation Wellness Center. Whether you are in the hospital, going to a medical appointment or simply facing the flu season, this edition will help you truly 'be prepared' to deal with whatever comes your way.

Managing your symptoms of Parkinson's at times can be difficult.  Treatment is increasingly complex with so many medicines available (this is a good thing!), so many ways to take them and the uniqueness of each individual.  Be prepared to take control of your medical situation. Understanding your disease, symptoms and treatment is the first step to taking control.  The next step is to organize your information using a system that helps both you and your provider. 

So get out that 3 ring binder dedicated to your care and store the worksheets described below as you complete them.

  • Be Prepared.  These steps will help you get the best care, whether you are admitted to a hospital or simply seeing your doctor in clinic. Take the steps to complete and file these forms.
  • Medication Alert Card- store this in your wallet or purse
  • Are you prepared for the flu season? Get the facts.

Also be sure to visit My Medical Chart for a complete list of forms and worksheets that you can print and use. We encourage you to bring these helpful tools to your support groups and to share these forms with others.

Finally we honor and support all caregivers this November, National Caregiver Month, with Caring for the Caregiver and urge you to do something good for yourself.

Join us as in January as we celebrate the new year with our New Year's Resolution edition.  Until then, have a wonderful holiday season!

Be prepared and be in control,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

September/October 2011

Dear Wellness Member,

Welcome to Be Safe, the September -October 2011 edition of the Northwest Parkinson’s Foundation Wellness Center.

In November 2010, The American Academy of Neurology (AAN) published a groundbreaking report, Improving quality of care for all with Parkinson’s disease, that listed key measures or problems that Neurologists should review with their patients, in an effort to improve the care of people with Parkinson’s.  Safety was one of these measures and concludes our 5 part series on quality care.

Join us in October for Beyond the Limits as we highlight stories of inspiration, support and strength from the first ever PD-MS climb of Kilimanjaro.

Happy Summer,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

Summer 2011

Dear Wellness Member,

Welcome to Reach Higher- Team Parkinson's Kilimanjaro. On July 13th, 8 people and care partners with Parkinson's and 2 NWPF board members will join others with MS on a 7 day climb to the summit of Africa's highest peak. Our goal is to:

“Change the lives of those impacted by a neurological condition though self empowerment.  Break down barriers and myths that have defined individuals by a disease for decades. Increase public awareness that the challenges faced by individuals living with a neurological condition do not limit their ability to realize their dreams and goals”, Sierra Farris PA-C, team PD leader and climber.

Join us during our climbing week as you set your own summit goal and pledge your own wellness activities.

  • Learn about Team Parkinson's Kilimanjaro.  
  • Be a part of our team. Join Us in the Wellness Challenge. 
  • Follow Our Journey. July 13 -19th for daily updates and messages from the climbing group as we make our way to the top of Africa.
  • Celebrate with Us. Become a part of our inspirational summit slide show by submitting your photo or message to wellness@nwpf.org.

Find more information about our Summit Celebration for Living Better and slide show presentation in next month's wellness edition.

Reach Higher,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

June/July 2011

Dear Wellness Member, 

Welcome to Walking, Balance and Falls, the June-July 2011 edition of the Northwest Parkinson’s Foundation Wellness Center.

In November 2010, The American Academy of Neurology (AAN) published a groundbreaking report, Improving quality of care for all with Parkinson’s disease, that listed key measures or problems that Neurologists should review with their patients, in an effort to improve the care of people with Parkinson’s.  Fall prevention was one of these measures.

Join us as we learn more about Walking- Balance-Fall Prevention.

  • Changes in Walking. Learn about the changes that can occur with walking in Parkinson's disease.
  • Gait Freezing. What is it and how do you best manage with this problem.
  • Posture- Is it Parkinson's or old age? 
  • Improve your balance.

Virtual Team Parkinson’s offers yet another way for you to get involved, support, inspire and share in our group’s accomplishments. Our group far exceeded our ultimate goal and continue to go strong.  See how our group did and follow us as we meet our new challenge.  You can follow our own NWPF Team Parkinson's climbing team in real time as we climb Kilimanjaro July 13th through the 19th to raise awareness about PD and redefine the limits set forth by this disease. Team link coming soon.

Join us in August as we complete our series on teamwork as outlined in the AAN care report on quality care and tackle the topic of Safety.

Happy Summer,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

May 2011

Dear Wellness Member,

Welcome to the May edition of the Northwest Parkinson’s Foundation Wellness Center, a virtual community focused on hope, healing, and wellness for all touched by Parkinson’s.   

This month is the third of a 5 part series, Teamwork: Working together for better results. Through teamwork we can accomplish so much more than we can alone- whether it relates to our medical care or living our best with Parkinson’s. In November 2010, The American Academy of Neurology (AAN) published a groundbreaking report, Improving quality of care for all with Parkinson’s disease, that listed key measures or problems that Neurologists should review with their patients, in an effort to improve the care of people with Parkinson’s.  

This month's focus is on one of those key measures-Sleep- as we review the sleep problems facing many with Parkinson's and most importantly- what you can do about it.

  • Sleep Problems. Learn about the different sleep problems experienced by many with Parkinson's.
  • Sleep Hygiene- Tips for better sleep. Print this handout and try these simple steps for better sleep.  
  • See our 2011 Wellness Topic Survey results. We have tallied your votes and will use this information for future wellness topics.
  • Power of the Mind. Second annual Wellness Day video and handouts are now available for your viewing.

Virtual Team Parkinson’s offers yet another way for you to get involved, support, inspire and share in our group’s accomplishments. Our group far exceeded our April goals. See how our group did and follow us as we meet May's new goal. 

Join us next month as we continue part 4 of this 5 part series on quality care and tackle each of the problems outlined in the AAN care report.

Best Of  Health,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

April 2011

Dear Wellness Member, 

Welcome to the April edition of the Northwest Parkinson’s Foundation Wellness Center, a virtual community focused on hope, healing, and wellness for all touched by Parkinson’s.   

This month is the second of a 5 part series, Teamwork: Working together for better results.Through teamwork we can accomplish so much more than we can alone- whether it relates to our medical care or living our best with Parkinson’s. This series will give you the information and tools you need to partner with your provider and be an active member of your medical team. 

In November 2010, The American Academy of Neurology (AAN) published a groundbreaking report that listed key measures or problems that neurologists should review with their patients, in an effort to improve the care of people with Parkinson’s. We will review these recommendations, offer ways for you to help your doctor take the best care of you, and tips to help with your own self-care management.

Improving quality of care for all with Parkinson’s disease

  • AAN Report. This month’s focus is atypical parkinsonism.
  • Making the diagnosis. Learn how the diagnosis of Parkinson's is made. You are the captain of your medical team and have the power to move your care in a successful direction.   
  • See our 2011 Wellness Topic Survey results.We have tallied your votes and will use this information for future wellness topics.
  • Power of the Mind. Second annual Wellness Day video and handouts are now available for your viewing.

Virtual Team Parkinson’s offers yet another way for you to get involved, support, inspire and share in our group’s accomplishments. Our group far exceeded our March goals. See how our group did and follow us as we meet April's new goal. 

Join us next month as we continue this part 2 of this 5 part series on quality care and tackle each of the problems outlined in the AAN care report.

 

Best Of  Health,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

March 2011

Dear Wellness Member, 

Welcome to the March edition of the Northwest Parkinson’s Foundation Wellness Center, a virtual community focused on hope, healing, and wellness for all touched by Parkinson’s.   

This month is the first of a 5 part series, Teamwork: Working together for better results. Through teamwork we can accomplish so much more than we can alone- whether it relates to our medical care or living our best with Parkinson’s. This series will give you the information and tools you need to partner with your provider and be an active member of your medical team. 

In November 2010, The American Academy of Neurology (AAN) published a groundbreaking report that listed key measures or problems that neurologists should review with their patients, in an effort to improve the care of people with Parkinson’s. We will review these recommendations, offer ways for you to help your doctor take the best care of you, and tips to help with your own self-care management.

Improving quality of care for all with Parkinson’s disease

  • AAN Report. This month’s focus constipation and bladder problems.
  • Build your medical team. You are the captain of your medical team and have the power to move your care in a successful direction. 
  • Be prepared.  Print and complete these worksheets to get the best care during your hospital stay or doctor’s visit. 

Virtual Team Parkinson’s offers yet another way for you to get involved, support, inspire and share in our group’s accomplishments. See how our group did in February and follow us as we meet March's new goal. 

Join us next month as we continue this 5 part series on quality care and tackle each of the problems outlined in the AAN care report.

Best Of  Health,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

February 2011

Dear Wellness Member,

Welcome to the February edition of the Northwest Parkinson’s Foundation Wellness Center, a virtual community focused on hope, healing, and wellness for all touched by Parkinson’s.   

Our focus this Valentine’s month is on relationships and intimacy. In this series we will highlight the importance of relationships, how they may change with chronic conditions such as Parkinson’s and how to keep them strong.  We will also explore the hard to talk about issue of sexuality and intimacy.

Want to join others like you that want to take their exercise and fitness to a new level. Join Virtual Team Parkinson’s and you too can work with this group to reach your goals.  Join and support one another as we set our personal exercise goals, and work together to reach new heights.

Join us next month as we expand our focus on teamwork in Teamwork: Working together for better results.    

Best Of  Health,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

January 2011

Dear Wellness Member,

Happy New Year 2011!

It has been one year since we started the NWPF Virtual Wellness Center and so much has happened since then. Thank you for your questions, comments and enthusiasm in making this site a success. We listened to you, our wellness members, and improved the navigation on our site to make it easier for you to find what you need. You participated in surveys that will help shape our wellness conference and 2011 content. Based on your feedback, we have added more information of Parkinson’s symptoms, videos and worksheets allowing you to optimize and personalize your care.

As we think ahead and wonder what 2011 has in store, many of us are thinking about new goals, plans and resolutions to make this year a positive one.

In A New Year, A Better Year! we will review tips to help you set your wellness goals and stay on track. Take a moment to review last year’s inaugural edition, Use it or Lose It, as a helpful and inspirational reminder of the many ways that you can make a difference toward a healthier brain with or without Parkinson’s. 

  • On your Mark, Get Set, Goal.  Tips on goal setting and making it happen. 
  • On Your Mark, Get Set, Go... Are you ready for change?
  • Team Parkinson's Kilimanjaro.  Help us meet our goal in making Team Parkinson’s Kilimanjaro a success. Join this team and be part of a virtual community with one goal- working together to inspire one another in our own personal wellness goals. Register for the Kick off Seminar on January 22nd. You may register on line or call 1-877-980-9500 to learn more about this exciting program.

Also don't forget to tell us what you want by taking our 2011 survey and sign up for the Second Annual Wellness Day as we explore the Power of the Mind - Your thoughts can affect how you feel.

Join us next month as we celebrate Valentine’s Day in our series Relationships and Intimacy.

Wishing you a well and happy in your New Year,

Monique L. Giroux, MD
Medical Director, Northwest Parkinson's Foundation

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