Whether you are a friend, spouse, brother, sister, mother or father, as a carepartner you are involved in the life of a person with Parkinson's disease.
You provide physical assistance, emotional support, love or companionship. Just as the challenges living with Parkinson's change over time so does your experience and needs as a carepartner.
A flood of emotions and frustrations can overwhelm you from the time of diagnosis to many years 'into the disease'. You may feel like you are alone, losing your own identity, losing a relationship to caregiving, taking less time for yourself and your own needs.
As a carepartner to someone with a chronic condition such as Parkinson's you may be at a higher risk for physical illness and depression given the added stress and burden of care giving. We hope you will take the steps to change this.
A carepartner is different than a caregiver. As a careparter you and your loved one with Parkinson's strive to maintain an equal albeit changing relationship. At times you may need care giving for your own emotional or physical health. This section is designed to be used by both the person with Parkinson's and their support person to help gain an equal understanding and appreciation for care giving and promoting the idea of partnership in care.
Healing, emotional health, nutrition and general health care needs are so important to the carepartner. Don't forget about yourself in the process. Many of the topics presented on this site can be used for your everyday wellness. Every year we will dedicate a web program to caregivers in November -National Caregiver's Month
Submit your personal stories of inspiration, empowerment and support to other carepartners in the community, questions and comments by clicking on contact us
Author: Monique Giroux, MD